Remembering Scott

It's Giving Tuesday, and time once again for my annual fundraiser for the Pheo Para Alliance, in honor of Scott. I am now in my second year of serving on its Board of Directors. This year, I led a mighty team of pheo para patients and advocates at this year's Rare Disease Week on Capitol Hill. Restoring funding for medical research and public health is an increasingly pressing issue, not just for rare disease but for all of us who need health care. I was proud to be one of the 1,000 advocates from all 50 states educating our legislators on rare disease and ways to improve access to health care. I was also proud to serve on the search committee this year and select our next Executive Director, JoBeth McCarthy. Stephanie Alband, our previous Executive Director, did an amazing job of building a strong team of volunteers and putting the Pheo Para Alliance on solid financial footing despite limited resources. I am looking forward to working with Jo and the PPA to build on that found...