Washington Post article on PNETs (December 20, 2022)

Informative Washington Post article on one patient's journey to getting diagnosed with pancreatic neuroendocrine tumor (or PNET). The average time from onset of symptoms to diagnosis for PNET patients is 7 years, with the delay resulting in the possibility of the cancer becoming metastatic by the time of diagnosis. In Scott's case, he was initially misdiagnosed with PNET and was later diagnosed with a related but even rarer cancer called paraganglioma, which was confirmed by a review of his biopsy and genetic testing. This is illustrative of the huge challenges in correctly diagnosing and treating rare cancers and other diseases. Fortunately for this patient, her persistence resulted in her catching the cancer at Stage 1 and having it surgically removed before it could spread.

https://www.washingtonpost.com/health/2022/12/17/stomach-pain-symptoms-diagnosis/