Giving Tuesday (November 28, 2022)

For #GivingTuesday, and in honor of Scott's birthday, I am starting a fundraiser for the Pheo Para Alliance, an organization that supports patients with pheochromocytoma or paraganglioma, which is the rare cancer that Scott had. Over the last year and a half, I've gotten to know this wonderful organization and met some of their board members. They organize helpful conferences to educate thousands of patients and caregivers around the world on the latest medical treatments and how to manage their symptoms. They designate Centers of Excellence for patients to identify where to go to find specialists, which is critical for a cancer this rare. They aid in research by helping to provide tumor samples (again, critical for a rare cancer) and collaborating with the Broad Institute on creating a cancer dependency map for pheo/paras which currently does not exist. Having a rare disease can be extremely isolating when you don't know anyone else with the same condition or what the treatments will be like. The Pheo Para Alliance provides a vitally important community for their patients and caregivers, and for that reason I hope you will consider them for Giving Tuesday. 

Donate here: https://secure.givelively.org/donate/pheo-alliance/donate-to-support-your-pheo-para-phriends-on-giving-tuesday/bessie-lewis

Pheo Para Alliance website: https://pheopara.org/ 

Charity Navigator profile: https://www.charitynavigator.org/ein/261510652